Better Examples of Violations of Deaf Parents’ Rights
Posted by ShelApr 18
One commenter in my last post asked for better examples of how Deaf parents had their parental rights overridden or violated. Well, here are some, from a source whom I shall keep anonymous:
a) “In Holland, I was told by deaf parents that their child would be placed in a mental institution if CI is not given to him. This occurred in 2009. ”
b) “I know of a family of two deaf children being threatened by the state social worker to take away their children for refusing to enroll them in a public school as they wished to put their children in Fanwood, New York in 2004″
“We had a hard time to enroll our daughter who is hard of hearing in Montessori Children’s House because the school district didn’t agree with the curriculum for our daughter. It took us almost one year after enrolling her there to get the school district off our back. A lot of papers sent “fro and back” … Totally unnecessary.” This was in 1990.
“Oregon School for the Deaf is not permitted by the Oregon Department of Education (ODE) to deal with deaf children under the age of 5. They are referred to their own school districts, and the parents are educated about various modes of communication. There is absolutely no ASL specialists in these school districts. ODE prides in the fact that they know nothing about ASL. There’s no one in this state department who is well honed in the language and culture of the Deaf.”
Even as I type, I am getting more examples of Deaf parents’ rights to make decisions for their Deaf children being trampled.
Readers, if you have further examples, you are welcome to leave them here.
My point here is: that decisions like producing and voting on AB-2072, should NOT be done WITHOUT the input of those affected, which happen to be us… the Deaf community, especially Deaf children in this generation and future generations. Remember the rallying cry of the Blacks during Civil Rights Movement: “Not about us, without us!”
19 comments
Comment by Don G. on April 18, 2010 at 11:31 pm
Some more examples:
In Michigan or Wisconsin a few years back, Deaf mom Lee Larsen was told by a Social Worker that she had to implant her Deaf children, under the grounds that she would be considered to be “neglecting” the children by denying them access to the wonderful world of sound. Fortunately, the judge in her case decided that a parent’s right to decide what was best for their child overrode the presumption that hearing was better for the children. With another judge, it could very easily have gone the other way.
In England a couple of years ago, they passed the HFEB bill banning the implantation of embryos found to contain the Deaf gene, even if the parents WANTED a Deaf child.
I have heard of some situations like in Florida, where Deaf people were told they could not take custody or guardianship of Hearing children, on the grounds that they supposedly would not be able to care for these children adequately or provide them with spoken language.
It does happen, it has happened, and it will continue to happen, that Deaf people’s parental rights will be trampled upon, unless we fight the audistic assumptions of society that to be Deaf is to be incompetent, incapable, and inferior.
Comment by CheryLfromMA on April 19, 2010 at 12:23 am
beautiful said! i went thru ALL communication modes–oral and TC/SEE then at last ASL….my english grammar was awful but after learning ASL my grammar got improved but limited because i finally understood when i was in college. Been there done that…. They failed us/STILL FAIL more more Deaf/HOH children! 130+ years still carry the same methods by hearing people knowing NOTHING about our language & culture. that method they use MUST STOP!!!! we deserve to be heard! NO CHILD left behind but yet, Deaf children are already LEFT BEHIND in homes & schools!!!
Comment by Candy on April 19, 2010 at 1:23 am
This NHSP reform group that consists of over 80 organizations….am curious who are these organizations?
I was thinking more of the onset when discovering that baby is deaf, some individual in charge is denying parents all the information so they can make informed decision. This parent that mentioned this, explained it at the OJ blog. She wasn’t allowed to opt for a different approach.
Now, your examples does not seem to involve onset of hearing loss but a bit later. But, it’s ok. I do acknowledge some of these problems do happen. It’s not exactly what I was looking for. Nevertheless… Because clearly one group of people believe that parents should be given every possible information whereas another group believes that ASL as language accquisision should be the focus at the beginning. And that is where the differences are. All info vs. ASL first. What if some parent decide they do not wish to have their baby learn ASL, that should be allowed, it should be ok. They should be allowed to make that decision as long as they know what they need to do to ensure success for their child.
Need examples of state agency dictating to deaf parents that they cannot use ASL after early hearing screening where they discover their child is deaf.
I have heard thousands of stories that just blows my mind, trust me. But, I have not heard of any state agency telling parents they MUST implant their child and they cannot use ASL during the onset. That would be so wrong. That’s why I feel no one should ever tell any parent, deaf or not, how to raise their child as far as what option or language to use.
One other thing, It is very common to have problems with school districts about placement, typically that does not involve early hearing screening process, but rather, district funds. Money. That’s what it is. AB2072 would have no bearing on that kind of scenario within the school district. This topic is getting bigger than the AB2072 issue already!
I will bow out and let your other commenters contribute. Need to get to bed and get ready for my work week.
Comment by Elizabeth on April 19, 2010 at 5:50 am
These are better examples of parents’ rights being trampled on. Yes. But, they are not examples of parents being forced to make one choice (whether that is to implant their child or be forced to send them to a specific school in one area). Often, parents will try to do something and schools and/or medical institutions will tell them no or that they must wait.
This happens to all students, not just deaf students. Parents who request something or want something specific for their child within a school system will usually have to fight for it.
But, I have yet to know of a situation where parents were forced into something they did not ask for (other than to change schools or to wait). I see a lot of times them being refused services they request. And if they are not refused the service we will give it to them the way it was not intended (in other words we will give it to them half-assed).
Right now I am trying to fight the system in relation to my students’ rights to interpreters. But, there is only so much I can do. If I get into to it too much, I worry that I could be fired.
Sad, I know.
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Comment by White Ghost on April 19, 2010 at 8:14 am
Shel –
I know there are many fights between the family and relatives including the divorce custody rights in the justice system. I know it’s getting old but trampled.
Remember the “Sound and Fury?” It was nominated for the best documentary in the Oscar awards. This documentary was about Grandma who desperately argued with her son to respect the oldest granddaughter’s wish for getting CI. It was extraordinary and educational story. (They COULD have effected them for going to the court in order to respect granddaughter’s wish.)
Shel, I like your thoughts and arguments, eventhough we have had some disagreements. But that’s okay.
Comment by RLM on April 19, 2010 at 11:45 am
GREAT posting, Shelly! I would love to see you being the lecturer and guest on mainstream media outlet to address on the issue of educational authority trample on deaf parents and parents of deaf children;s rights, especially forced CI implant. Do you want me to book you on Oprah show???
Robert L. Mason (RLM)
RLMDEAF blog
Comment by Shel on April 19, 2010 at 12:48 pm
Ha, Robert!
Nah, I think I’ll pass on the Oprah show. I’m actually a shy and retiring individual .
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